We know that collaboration is the key to developing supportive rare disease communities. That's why we work with patients, families, non-profits, physicians, researchers, and other stakeholders to create platforms for collaboration, networking, and resource sharing.
Our rare disease journey "officially" began in 2009 with the birth of our daughter, Cambria, but it really began long before that.
Eden Lord, Founder and CEO of The Dash Alliance, has acted as a rare disease caregiver since 1993, caring first for her mother, then her father. She works to shorten the path to diagnosis while building support networks for rare disease stakeholders.